Managing the psychological aspects of altered appearance: the development of an information resource for people with disfiguring conditions.
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Abstract
As the demand for health-related information grows, people are looking beyond health professionals, to patient-led organisations or support groups. The development of an information service is therefore a primary objective for such groups. Why information is needed, what kind of information people want, and who can provide it are central questions. These are discussed in the context of the development of a written information series, produced by a patient-led organisation, for people with facial disfigurement.