Comparison of instruments addressing quality of life in patients with ALS and their caregivers.
cross_sectional · Level IV
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- Record sourced from PubMed, PMID 11805269.
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Abstract
Most quality of life (QoL) instruments for ALS focus on function. An open instrument, the Schedule for the Evaluation of Individual Quality of Life-Direct Weight (SEIQoL-DW) that asks subjects to nominate and rate QoL areas important at the time of evaluation, was given to patients and caregiver spouses. Patients also completed function-based instruments. Correlations were poor between SEIQoL-DW and function-based instruments. SEIQoL-DW scores were worse for caregivers than for patients, probably explained by shifts in patient expectations with disease progression.
Medical subject headings
- Amyotrophic Lateral Sclerosis
- Caregivers
- Quality of Life
- Surveys and Questionnaires