Ethical review of research into rare genetic disorders.
Level V
Where this comes from
- Record sourced from PubMed, PMID 15284160.
- Also identified by PMC identifier 498040.
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Abstract
Although some work on rare diseases is clearly clinical investigation and some clearly research, much activity falls uneasily between the two. Where should we draw the line and how can we ensure research gets appropriate ethical review?
Medical subject headings
- Ethical Review
- Ethics, Research
- Genetic Diseases, Inborn
- Rare Diseases