Fragile X syndrome carrier screening in the prenatal genetic counseling setting.

Cronister, Amy; DiMaio, Miriam; Mahoney, Maurice J; Donnenfeld, Alan E; Hallam, Stephanie · Genet Med · 2005

cross_sectional · Level IV

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Abstract

To document our experience with fragile X carrier screening. In this study, 29,103 women with no known or suspected family history of fragile X syndrome were offered fragile X carrier screening during their prenatal genetic counseling visit. Screening acceptance was analyzed by referral indication, carrier frequencies documented, and prenatal outcome data presented. Overall, 7.9% accepted carrier screening. The premutation frequency was 1 in 382, and the intermediate allele frequency was 1 in 143. Fragile X screening is a desirable option for some women seeking prenatal genetic counseling and should be made available to this population.

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