Patient perspective: choosing or developing instruments.

Kirwan, John R; Fries, James F; Hewlett, Sarah; Osborne, Richard H · J Rheumatol · 2011

Level V

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Abstract

Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approaches, the PROMISE computer adaptive testing (CAT) system and development of a rheumatoid arthritis-specific questionnaire to measure fatigue; a tentative proposal for a PRO instrument development pathway is also made.

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