Improving the consent process for neuroepidemiologic research in resource-poor settings.
expert_opinion · Level V
Where this comes from
- Record sourced from PubMed, PMID 24616193.
- Also identified by DOI 10.1212/WNL.0000000000000184 and PMC identifier 3959750.
- No licence information is recorded for this record.
- Because redistribution is not established, this page shows the abstract only. Follow the links below for the full text.
Abstract
Participation rates in epidemiologic studies in African communities are historically high. We recently performed a pilot prevalence study for neurologic morbidity in Mungushi, Tanzania, where the participation rate was 645/657 subjects (98.2%).<sup>1</sup> We questioned whether this high rate was due to a sincere motivation to participate or a fear of refusal of participation. As Western investigators are increasingly performing neuroepidemiologic work in Africa, it is imperative to distinguish between the 2 explanations. Investigators need to tailor the consent process to the local community's needs, and be sensitive to the motivation of the participants whose culture may differ from their own.
Medical subject headings
- Health Surveys
- Informed Consent
- Mass Screening
- Nervous System Diseases