Reconstructing the Rasch-Built Myotonic Dystrophy Type 1 Activity and Participation Scale.
other · Level V
Where this comes from
- Record sourced from PubMed, PMID 26484877.
- Also identified by DOI 10.1371/journal.pone.0139944 and PMC identifier 4618741.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
INTRODUCTION: A previously published Rasch-built activity and participation scale specifically designed for patients with myotonic dystrophy type 1 (DM1) was criticized for having been constructed in a relatively small cohort of patients and containing items too broadly phrased for DM1 patients, thus hampering its clinical use. METHODS: We report the results of the reconstructed Rasch-built DM1 activity and participation scale for clinical use (DM1-ActivC) through Rasch analyses using an expanded questionnaire containing 146 more simply phrased activity and participation inquiries completed by 340 patients with DM1. RESULTS: Through stepwise investigation including data quality control, model fit, response category ordering, local dependency and item bias, we succeeded in reconstructing the DM1-ActivC consisting of 25 items that showed good Rasch model fit, including construct convergent validity, items' weights and persons' locations reliability, and unidimensionality. CONCLUSION: The DM1-ActivC scale has been reconstructed and fulfills all modern clinimetric requirements. Its use is recommended in future longitudinal trials in patients with DM1 to determine its responsiveness.
Medical subject headings
- Disability Evaluation
- Motor Activity
- Myotonic Dystrophy