Report of the National Heart, Lung, and Blood Institute Working Group: An Integrated Network for Congenital Heart Disease Research.
expert_opinion · Level V
Where this comes from
- Record sourced from PubMed, PMID 27045129.
- Also identified by DOI 10.1161/CIRCULATIONAHA.115.019506 and PMC identifier 4932890.
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Abstract
The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.
Medical subject headings
- Biomedical Research
- Data Mining
- Databases, Factual
- Health Information Systems
- Heart Defects, Congenital