The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and healthcare providers.
other · Level V
Where this comes from
- Record sourced from PubMed, PMID 28778919.
- Also identified by DOI 10.1136/thoraxjnl-2017-210473 and PMC identifier 5870449.
- Licence recorded as CC BY-NC.
- Because redistribution is not established, this page shows the abstract only. Follow the links below for the full text.
Abstract
There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on 10 research priorities which will be attractive to funders.
Medical subject headings
- Cystic Fibrosis
- Health Personnel