People-powered data collaboratives: fueling data science with the health-related experiences of individuals.
Where this comes from
- Record sourced from PubMed, PMID 30576557.
- Also identified by DOI 10.1093/jamia/ocy159 and PMC identifier 6339513.
- Licence recorded as CC BY-NC-ND.
- Because redistribution is not established, this page shows the abstract only. Follow the links below for the full text.
Abstract
The creation of people-driven data collaboratives, with governance structures that enable participants to have a meaningful voice in issues surrounding the use of their own data, is a novel strategy to harness our growing capacity to develop and maintain immense data assets from the real health experiences of individuals.
Medical subject headings
- Data Science
- Patient Participation