OMERACT 2018 Modified Patient-reported Outcome Domain Core Set in the Life Impact Area for Adult Idiopathic Inflammatory Myopathies.
other · Level V
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- Record sourced from PubMed, PMID 30770504.
- Also identified by DOI 10.3899/jrheum.181065.
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Abstract
To present and vote on a myositis modified patient-reported outcome core domain set in the life impact area at the Outcome Measures in Rheumatology (OMERACT) 2018. Based on results from international focus groups and Delphi surveys, a draft core set was developed. Domains muscle symptoms, fatigue, level of physical activity, and pain reached ≥ 70% consensus and were mandatory to assess in all trials. Domains lung, joint, and skin symptoms were mandatory in specific circumstances. This core set was endorsed by > 85% at OMERACT 2018. We propose a life impact core set for patients with idiopathic inflammatory myopathies and will proceed with instrument selections.
Medical subject headings
- Myositis
- Outcome Assessment, Health Care
- Patient Reported Outcome Measures
- Quality of Life