Open Access as a Revolution: Knowledge Alters Power.
Level V
Where this comes from
- Record sourced from PubMed, PMID 31825321.
- Also identified by DOI 10.2196/16368 and PMC identifier 6931055.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
The slogan "Gimme My Damn Data" has become a hallmark of a patient movement whose goal is to gain access to data in their medical records. Its first conference appearance was ten years ago, in September 2009. In the decade since there have been enormous changes in both the technology and sociology of medicine as well as in their synthesis. As the patient movement has made strides, it has been met with opposition and obstacles. It has also become clear that the availability of Open Access information is just as empowering (or disabling) as access to electronic medical records and device data. Knowledge truly is power, and to withhold knowledge is to disempower patients. This essay lays out many examples of how this shows up as we strive for the best future of care.
Medical subject headings
- Electronic Health Records
- Health Knowledge, Attitudes, Practice
- Patient Access to Records
- Patient Participation
- Telemedicine