All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent.
Where this comes from
- Record sourced from PubMed, PMID 32463372.
- Also identified by DOI 10.2196/16879 and PMC identifier 7290498.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
Tremendous growth in the types of data that are collected and their interlinkage are enabling more predictions of individuals' behavior, health status, and diseases. Legislation in many countries treats health-related data as a special sensitive kind of data. Today's massive linkage of data, however, could transform "nonhealth" data into sensitive health data. In this paper, we argue that the notion of health data should be broadened and should also take into account past and future health data and indirect, inferred, and invisible health data. We also lay out the ethical and legal implications of our model.
Medical subject headings
- Computer Security
- Informed Consent