Oncology healthcare professionals' knowledge, attitudes, and practices regarding young carers.

Abstract

Increasing numbers of youths are facing a relative's cancer. In this context, some are required to provide significant support and are called young carers (YCs). However, little is known about how these youth are viewed and supported by health professionals. The aim of this study was to investigate the knowledge, attitudes, and practices of oncology healthcare professionals regarding YCs. Thirty-one oncology professionals working in France (adult and pediatric departments and homecare services) participated in semi-structured interviews. The results indicated that almost all professionals had already met a YC and could identify several situations in their professional context. Their knowledge of YCs appeared to influence their attitudes and practices. They perceived this situation in a rather superficial way when their discourse and ideas were explored in-depth. They mentioned some ideas for improving support for YCs, but also many barriers. The results highlight a moderate level of awareness. Thus, it is necessary to enhance providers' awareness and knowledge of YCs. Awareness campaigns and training programs need to be developed for oncology healthcare professionals to help them better identify, understand, and support YCs and their families. This type of action would positively impact patient care.