Health data justice: building new norms for health data governance.
expert_opinion · Level V
Where this comes from
- Record sourced from PubMed, PMID 36854964.
- Also identified by DOI 10.1038/s41746-023-00780-4 and PMC identifier 9972302.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
The retention and use of health-related data by government, corporate, and health professional actors risk exacerbating the harms of colonial systems of inequality in which health care and public health are situated, regardless of the intentions about how those data are used. In this context, a data justice perspective presents opportunities to develop new norms of health-related data governance that hold health justice as the primary objective. In this perspective, we define the concept of health data justice, outline urgent issues informed by this approach, and propose five calls to action from a health data justice perspective.