Information needs of women with breast cancer participating in cardiovascular rehabilitation: A mixed-methods study.

Abstract

To determine the information needs of women with a history of breast cancer attending a cardiovascular rehabilitation (CR) program. A mixed-methods approach was used, including a cross-sectional online survey using an adapted version of the Toronto Information Needs Questionnaire Breast Cancer (TINQ-BC) and 7 virtual focus group sessions (n = 20). Overall, 50 responses were received. The TINQ-BC mean was 4.2 ± 0.5/5, with 34/42 items scoring higher than 4 (very important). The highest information needs were related to knowing if cancer is in their bodies or has come back, ways to prevent treatment side effects, and how the illness may affect their future. Participants identified their preferences for education delivery as discussion with peers/healthcare providers and lectures. The focus groups revealed six overarching themes: need for peer support, to make connections, and build relationships; comfort with and utility of technology; desire to learn about specific educational topics; preferences for education sessions; value of education; and value of exercise. These findings provided insight into the information needs of women with a history of breast cancer who participate in CR. The care of these patients should be personalized based on these needs to support their adherence to the program.