Adolescent and Young Adult Understanding of Their Childhood Cancer Predisposition Diagnosis: A Qualitative Study.

Howard Sharp, Katianne M; Blake, Alise; Flynn, Jessica; Brown, Sydney; Rashed, Jihan; Harrison, Lynn; McGee, Rose; Mandrell, Belinda et al. · J Pediatr · 2023

other · Level V

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Abstract

We characterized germline genetic test result understanding in adolescents and young adults (AYAs) (n = 21) with cancer 1-3.9 years post-disclosure using semistructured qualitative interviews. Most AYAs articulated their cancer risk; however, 5 did not remember results and a subset demonstrated misperceptions regarding risk or confusion regarding their medical care. These findings highlight variability in AYA understanding warranting further inquiry.

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