A refresh of the top 10 research priorities in cystic fibrosis.
other · Level V
Where this comes from
- Record sourced from PubMed, PMID 37286236.
- Also identified by DOI 10.1136/thorax-2023-220100 and PMC identifier 10359564.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
In 2018 we published the James Lind Alliance (JLA) top 10 priorities for clinical research in cystic fibrosis (CF), chosen jointly by the patient and clinical communities. These priorities have led to new research funding. To establish whether priorities have changed with novel modulator therapies, we undertook an online international update through a series of surveys and a workshop. Patients and clinicians (n=1417) chose the refreshed top 10 from 971 new research questions (suggested by patients and clinicians) and 15 questions from 2018. We are working with the international community to promote research based on these refreshed top 10 priorities.
Medical subject headings
- Cystic Fibrosis
- Biomedical Research