Ethical Imperatives for Working With Diverse Populations in Digital Research.
review · Level V
Where this comes from
- Record sourced from PubMed, PMID 37721792.
- Also identified by DOI 10.2196/47884 and PMC identifier 10546274.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
Digital research methodologies are driving a revolution in health technology but do not yet fully engage diverse and historically underrepresented populations. In this paper, we explore the ethical imperative for such engagement alongside accompanying challenges related to recruitment, appreciation of risk, and confidentiality, among others. We critically analyze existing research ethics frameworks and find that their reliance on individualistic and autonomy-focused models of research ethics does not offer adequate protection in the context of the diversity imperative. To meet the requirements of justice and inclusivity in digital research, methods will benefit from a reorientation toward more participatory practices.
Medical subject headings
- Biomedical Technology
- Ethics, Research