Challenges in Pediatric Home-Based Hospice and Palliative Care: A Case Series.

Jarrell, Jill Ann; Grossoehme, Daniel H; Friebert, Sarah; Ajayi, Toluwalase A; Thienprayoon, Rachel; Humphrey, Lisa · J Pain Symptom Manage · 2024

case_series · Level IV

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Abstract

Pediatric home-based hospice and palliative care is a growing and important sub-field within the larger pediatric palliative care landscape. Despite research demonstrating the clinical and systemic efficacy of pediatric home-based hospice and palliative care, there remain barriers to its optimal development, implementation, and dissemination as well as best clinical practice knowledge gaps. This case series presents specific examples of ubiquitous challenges in pediatric home-based hospice and palliative care in hopes of guiding future research, education, advocacy, and program development efforts.

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