Biospecimen research and the law.
editorial · Level V
Where this comes from
- Record sourced from PubMed, PMID 39146400.
- Also identified by DOI 10.1126/science.ads3190.
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Abstract
In the well-known case of Henrietta Lacks, cells from her tumor were taken without consent and used more than 70 years ago to create the first immortal human cell line ("HeLa" cells). That event led to many scientific breakthroughs and to the debate about the ethics of consent and requirements for compensation. May 2024 saw two decisions by US federal courts-one related to Lacks-that could narrow the scope of research allowed on tissues obtained without consent and on nonidentified tissues, with implications for biomedicine.
Medical subject headings
- Biological Specimen Banks
- Biomedical Research
- Informed Consent