Early Young Adult Death Underscores the Need for Adolescent and Young Adult Transition Programs in Neurofibromatosis Type 1.
Where this comes from
- Record sourced from PubMed, PMID 39557385.
- Also identified by DOI 10.1016/j.jpeds.2024.114413 and PMC identifier 12828893.
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Abstract
There are few centers with combined pediatric and adult neurofibromatosis 1 practices and transition of care programming. Using an electronic health records-based approach, we found an early death peak in the fourth decade of life largely owing to malignancy, underscoring the need for integrated neurological training and practice across the lifespan.
Medical subject headings
- Neurofibromatosis 1
- Transition to Adult Care