Exploring experiences of parents of young children with cerebral palsy with a standing frame program promoting hip development.

Abstract

Children with Cerebral Palsy (CP) are at risk for hip problems, and early monitoring and intervention are recommended. This study explores the experiences of parents of young children with CP with a standing frame program (SFP) promoting hip development and identifies factors promoting or hindering the program's feasibility. Qualitative data were collected through 11 interviews, which were transcribed, and analyzed thematically. Quantitative data were collected through ratings of the level of agreement with statements related to the SFP. For parents, balancing between their roles as parent and co-therapist, implementing the SFP involved physical and mental load. Involving the social environment, sharing care responsibilities, and integrating the SFP in different settings facilitated implementation of the program. Parents were motivated by potential benefits for their child and the opportunity for quality time. Implementing the SFP is challenging for parents. For better integration of the SFP program into daily life, it is important to consider parents' needs and to collaborate with all caregivers. Future research should strengthen evidence on the SFP's impact on hip development and parental burden. Additionally, it is essential to ensure that the perspectives of burdened parents are incorporated in the program's development and evaluation.