Three-Point Perspective on Poststroke Fatigue: Grounded Theory Study.

Abstract

To describe and compare the experiences of poststroke fatigue (PSF) from the perspectives of stroke survivors, caregivers, care providers and also to develop a model of PSF to explain, predict, guide advancement of fatigue management. A constructivist grounded theory approach with one semistructured interview per participant and a member-check follow-up. Theoretical sampling followed by data analysis resulted in a data-grounded model. A clinical setting or via videoconference as per the participant's preference or location. Stroke survivors with PSF (N=17), caregivers of someone with stroke (N=10), and stroke care providers (N=19). Not applicable. Not applicable. We developed the Model of Living With PSF, consisting of the causes, perceptions, and triggers of fatigue with constant problem-solving management. All groups described living with PSF as experiencing physical and or cognitive fatigue while incorporating an ongoing, adaptive management process. However, participants occasionally misconstrued fatigue for lack of motivation, reported varying triggers, and noted discrepancies in PSF education provision. The 3 participant groups may benefit from opportunities to recognize physical and cognitive fatigue, to define personal causes and triggers of the person with PSF, and to work together through an adaptive strategy process. The Model of Living With PSF may help guide education, structure discussions, and facilitate collaboration for more effective fatigue management. Research is needed to validate the constructs and fatigue management strategies.