A mapping review of good practices of participatory research for an impactful collaboration in disabilities studies.

Abstract

Participatory research is particularly relevant to understanding the challenges faced by people with disabilities (PWDs), as it actively involves them as partners. This collaboration enables research methodologies to be better adapted to their lived realities, producing more relevant and applicable results. By involving PWDs directly, participatory research helps reduce systemic barriers, promotes inclusion and leads to a deeper understanding and more thoughtful consideration of their specific needs within the research process. Yet, studies have identified hurdles associated with this approach, prompting questions about how organizations portray PWDs, the dynamics among research stakeholders, the distribution of decision-making power, and the actual impact of research on its partners. This study aims to identify the factors that influence the process and results of participatory research in the field of disability studies. We conducted a mapping review following the PRISMA-ScR guidelines, and analyzed the results according to the input-throughput-outcomes Bergen model. 42 studies were included in the analysis. We identified partners skills and training, power sharing and benefits of active involvement as facilitators of participatory research. On the other hand, contextual challenges, and lack of guidance are reported as obstacles. This study provides insight into the various facilitators and barriers to participatory research. It also explores how different research processes interact to produce positive, valid and rigorous results.