Trajectories of change in experiences of multiple sclerosis: insights from an online group psychological intervention.

Abstract

Literature on psychological interventions for people affected by MS highlights the necessity for integrative and flexible approaches. Here, we present a subset of the qualitative findings of a feasibility and acceptability study of an eight-week online group psychological intervention, MyMS-Ally. The study followed Longitudinal Interpretative Phenome-nological Analysis for data collection and analysis. Five participants who took part in one group were interviewed three times; before the intervention, post-intervention and at follow-up (three months). Data were analysed on a case-by-case basis. Findings revealed idiosyncratic trajectories of change. Participants with invisible disability initially avoided and fought their MS. Post-intervention, they acknowledged their condition as part of themselves and their lives, developing compassion towards their limitations and needs. Participants with visible disability initially adopted a judgemental attitude towards their growing needs and loss of independence, moving to more empowered and accepting positions following the group intervention. Despite the limitations due to the small sample and lack of diversity in our sample, the qualitative findings presented provide significant insights into change participants experienced. The results highlight the need to consider self-concept and construction of identity when developing and evaluating individualised psychological interventions for people with MS.