Person-centred care and self-management in the context of communication changes in Parkinson's disease: a pilot study of three dyads.

Abstract

To pilot the use of qualitative interviews and video recorded everyday conversations as a basis for individually tailored dyadic communicative intervention from a self-management perspective for clients with Parkinson's disease and their close communication partners. Three dyads participated and met with the researcher for three sessions. Semi-structured interviews and the dyads' video recordings of their conversations formed the basis for problem identification, goal setting, and the dyad's independent work between the sessions. The intervention was evaluated through scaled ratings and semi-structured interviews. The quantitative data was analysed through descriptive statistics and the qualitative interview data through content analysis. Needs and goals for the dyads differed. The dyads' video recordings of their everyday conversations were to some extent arranged but still provided valuable examples supporting exploration of communicative behaviours and habits. The dyads reported changes in communicative awareness and mind-set as well as minor changes in behaviour at the follow-up session. The intervention content was positively evaluated. Video recorded everyday conversations combined with reflective discussions about communicative behaviours may contribute increased communicative awareness and tools for adjustment of conversational habits. Further research is needed regarding treatment timing, dose, and effects, also from a long-term perspective.