Enabling secure and self determined health data sharing and consent management.
review · Level V
Where this comes from
- Record sourced from PubMed, PMID 40885802.
- Also identified by DOI 10.1038/s41746-025-01945-z and PMC identifier 12398500.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
Digital health tools generate vast sensitive data not only in clinic but also from apps and wearables. Effective consent management builds trust, increasing willingness for data sharing. We present a novel early-stage conceptual framework, reviewing technologies like blockchain, self-sovereign identity, and de-identified tokens for integration into a consent management system to enable tracking of consent and data utilization. This balances data access and privacy to encourage data sharing and improve healthcare.