Long-Term Quality of Life Outcomes After Head and Neck Cancer in New Zealand.

Abstract

Understanding quality of life (QOL) after head and neck cancer (HNC) is crucial for service planning. This study explored survivorship experiences in New Zealand. This study includes clinical records audit (n = 1277), cross-sectional online survey (n = 195), and semi-structured interviews (n = 22). Audit included all patients presenting to one tertiary cancer center (2012-2023). All 750 patients surviving > 12 months past primary treatment were invited to complete a survey. All survey respondents were offered follow-up interviews. Patients (male: 72%, 51-70 years: 45%; oral cavity 32%, oropharynx 21%) were often diagnosed at advanced stages (T3-4: 45%) requiring multimodal treatment (71%). Survey respondents reported persisting voice difficulties (25% elevated VHI-10) and depression (18% elevated HADS). Fear of negative evaluation was evident in younger survey respondents. Psychological support was the most desired long-term service in surveys and interviews. Interviewees described a paucity of services post-treatment. This study describes challenges accessing long-term support after HNC. Advocating for long-term support may enhance survivorship experiences.