"If I do not coordinate it, who else will?" professionals' experiences with informal coordination in complex neurological rehabilitation services.

Skumsnes, Randi; Groven, Karen Synne; Thygesen, Hilde · Disabil Rehabil · 2026

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Abstract

This study aimed to explore healthcare professionals' experiences with informal coordination across healthcare levels in complex neurological rehabilitation services in Norway. Semi-structured qualitative interviews were held with fourteen healthcare professionals working in rehabilitation services and representing different professions and healthcare-level workplaces. The transcribed data material was analysed using reflexive thematic analysis and discussed applying perspectives of person-centred rehabilitation. Two themes were developed that related to participants' experiences with informal coordination as supplementing perceived gaps or shortcomings in formal coordination [1]: Engagement and taking initiative in commitments to the patient [2], Challenges and dilemmas with informal coordination. In managing intricate neurological rehabilitation services across various professions and organisations, informal coordinating activities are essential to complement formal structures. While informal coordination is vital for achieving relational and person-centred rehabilitation, it can lead to challenges related to role ambiguity and unclear responsibilities.Our findings are relevant for rehabilitation and disability studies, as interprofessional collaboration and coordination are fundamental to service delivery. Further research is needed to explore how to integrate formal and informal coordination in complex neurological rehabilitation.

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