Medical Imaging Data Calls for a Thoughtful and Collaborative Approach to Data Governance.
expert_opinion · Level V
Where this comes from
- Record sourced from PubMed, PMID 41150677.
- Also identified by DOI 10.1371/journal.pdig.0001046 and PMC identifier 12561909.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
The availability of medical imaging data is indispensable for medical advancements such as the development of new diagnostic tools, improved surgical navigation systems, and profiling for personalized medicine through imaging biomarkers. A central challenge in data governance is balancing the need to protect patient privacy with the necessity of promoting scientific innovation. Restrictive data governance policies could limit access to the large, high-quality datasets needed for such advancements. Conversely, lenient policies could compromise patient trust and lead to potential misuse of sensitive information. We call for a deliberate and well-considered approach to data governance, highlighting important factors that patients and healthcare organizations should consider when making imaging data governance decisions around data sharing.