Collaborative science in genomics: The value of data sharing and thoughtful stewardship.

Abstract

Large-scale data sharing is indispensable for advancing human genetics and genomics (HGG) research and medicine. The willingness of study participants and researchers to share data has been the foundation of rapid advancements of the HGG field for decades. If the potential benefits of HGG research are to be fully realized, maintaining a broad data-sharing ethos and policy environment is vital. ASHG reasserts the HGG community's commitment to responsible data stewardship and emphasizes the role of researchers in working alongside other interested parties to create a secure research enterprise without imposing undue restrictions on researchers' ability to collaborate, share data, and advance knowledge while also protecting the will and privacy of participants. This balance is key to building sustainable partnerships and a cohesive information ecosystem.