Latent profile analysis of social participation in stroke survivors with limb dysfunction: a mixed-methods study.

Abstract

This study aimed to identify profiles of social participation among stroke survivors with limb dysfunction and explore the factors influencing these profiles. A convergent mixed-methods design. The quantitative phase involved 499 participants recruited from 5 neurorehabilitation centres in Shanghai between December 2023 and June 2025. Participants completed measures including the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-P), the Connor-Davidson Resilience Scale (CD-RISC-10), and the Modified Rankin Scale (mRS). Qualitative semi-structured interviews were performed with 16 participants to explore lived experiences of social participation. Latent profile analysis revealed 4 distinct social participation profiles: "Active Integration", "Contented Conservatism", "Cautious Conservatism", and "Alienated Disengagement". A multivariate analysis identified age, resilience, and physical function as significant predictors of profile membership. Qualitative findings uncovered 2 core emotional experiences (a sense of loss vs a sense of rebuilding) and 3 behavioural patterns (activist, conservative, alienated), which effectively explained the quantitative profiles' characteristics and their underlying mechanisms. The integration of data provided a nuanced person-centred framework depicting the heterogeneity in post-stroke social participation. Social participation among stroke survivors is heterogeneous and can be classified into 4 distinct profiles shaped by the interplay of physical function, resilience, and sociodemographic factors. The findings underscore the necessity of implementing profile-specific, stepped-care interventions for effectively enhancing post-stroke social participation.