Mainzelliste: Ten years of pseudonymization, record linkage, and informed consent management.
other · Level V
Where this comes from
- Record sourced from PubMed, PMID 41583972.
- Also identified by DOI 10.1016/j.patter.2025.101432 and PMC identifier 12827741.
- Licence recorded as CC BY.
- The licence permits redistribution, so the abstract is shown in full and the full text is available from the publisher.
Abstract
Record linkage and pseudonymization are crucial tasks in collaborative biomedical research. Data for a patient are rarely stored in one place and therefore often need to be linked and integrated across multiple institutions. Mainzelliste is an open-source software solution designed to solve these challenges by providing a comprehensive and flexible toolkit for pseudonymization, record linkage, and consent management. It supports a variety of pseudonyms, record linkage methods, and modular, informed patient consents. A highly flexible REST application programming interface (API) allows tight integration into existing applications and workflows. Since its initial release in 2015, Mainzelliste has evolved into a vibrant open-source software solution "by researchers, for researchers" including a user-friendly graphical interface, support for HL7 FHIR for consent and patient data, and record linkage based on secure multi-party computation, thereby supporting secure and efficient biomedical research.