Research priorities for paediatric peri-operative medicine identified by Australian children and young people.

Abstract

Parents and caregivers play a critical role in the care of their child peri-operatively. Our team undertook previous research with parents/carers, which identified Australian parents' top 10 research priorities for paediatric anaesthesia and peri-operative medicine. While this was an important exercise, it focused on parent-reported experiences rather than the priorities of the children themselves; however, the experiences and concerns of parents/carers may not always reflect those of their child. It has been shown previously how integral it is to listen to each child's own voice to improve and create a more adaptive and safer peri-operative environment. This research prioritisation study was developed for children and used a modified James Lind Alliance method that involved surveys, a youth community conversation and a final consensus-based prioritisation meeting, all of which were conducted online. Participants were children and young people aged 6-18 y living in Australia. In total, we engaged 356 children and young people. We identified the top research priorities for Australian children and young people for paediatric anaesthesia and peri-operative medicine through a rigorous process of consensus. The final top 10 priorities were agreed by consensus after a multi-step process and included how to: reduce anxiety (including needle phobia); make anaesthesia safer; avoid postoperative complications (e.g. pain, sickness, agitation); and improve communication between children and doctors. The resulting priorities differed from those conducted in Australia for adult peri-operative medicine and from the parent/carer and clinician priorities identified previously for paediatric anaesthesia care. These research priorities can help guide future paediatric anaesthesia and peri-operative medicine research directions.