Exploring the lived experiences of patients with scapula alata: a qualitative study.

Abstract

Scapula alata (SA) is characterized by scapular winging and limited shoulder function, often as a result of long thoracic nerve impairment. While the physical manifestations are well-documented, the broader implications, particularly the psychological and social consequences, remain underexplored. This study aims to explore the lived experiences of patients with SA. A qualitative, cross-sectional design was applied. Semi-structured interviews were conducted with 11 patients from two Danish regional hospitals. Data were analyzed using Malterud's Systematic Text Condensation. Three main themes emerged [1]. Physical and functional limitations significantly impact daily activities, independence, and social engagement, leading to frustration and a feeling of loss of identity. [2] The mental burden and the invisibility of the condition, including feelings of isolation and a lack of understanding from others [3]. Interaction with the healthcare system is often characterized by delayed diagnoses, insufficient knowledge among professionals, and variation in treatment approaches. SA affects patients comprehensively, beyond physical limitations, to mental and social challenges. These findings highlight the need for early diagnosis, standardized treatment approaches, and comprehensive care that integrates physical and psychosocial support. Increasing awareness among healthcare providers could improve outcomes and quality of life for individuals with SA.