Let's do it together! Co-creating a supportive tool to enhance patient involvement in agenda setting in healthcare communication.

Abstract

Communication training improves healthcare professionals' person-centered skills, yet patients are less often supported in taking an active role. This paper describes the development of an explainer film to enhance patient empowerment and involvement in clinical interactions. The study was conducted at a Danish university hospital. Through participatory workshops, the project actively involved patients with diabetes, clinicians, and researchers in a co-reflective, collaborative process. Data collection included written field notes and videotaped documentation. Individuals with diabetes identified key challenges in actively participating in healthcare conversations. Patients expressed a desire for greater involvement in setting consultation agendas but often struggled to assert their needs within fixed clinical structures. To co-develop an explainer film, a participatory, iterative process involving patients, clinicians, and researchers was employed. This approach ensured a supportive tool that aligns with patients' real-world needs, enhancing its relevance and effectiveness in fostering communication skills and self-advocacy in clinical encounters. Developing supportive tools such as explainer films may enhance patient engagement and communication. Future efforts should focus on creating accessible, user-friendly resources to better align clinical communication with patients' needs.