Participation of fathers and siblings in home rehabilitation programmes for children with neuro-developmental delay: perspectives of fathers in Bulawayo, Zimbabwe.

Abstract

To assess participation levels of fathers and siblings in home-based rehabilitation for children with neuro-developmental delay (NDD) in Bulawayo, Zimbabwe, and identify facilitators and barriers. A concurrent mixed-methods cross-sectional design with a dominant quantitative component and a supplementary qualitative component was used. Data were collected from 196 fathers of children with NDD at two hospitals using a questionnaire. Quantitative data were analysed using descriptive statistics and logistic regression (α = 0.05) in Stata 17.0, while open-ended responses were thematically analysed in NVivo 12 using a deductive approach informed by the Social Ecological Model. Only 35 (17.9%) fathers and 20 (10.2%) siblings consistently participated. Fathers with tertiary education participated more (AOR = 6.4; 95% CI: 1.9-22.1; <i>p</i> = 0.003), as did fathers of male children (AOR = 2.8; 95% CI: 1.3-6.1; <i>p</i> = 0.009). Facilitators included ability to manage disability-related challenges and access to information. Barriers included emotional strain, work demands, and exclusion from sessions. Sibling participation was facilitated by parental supervision, play-based activities, and professional support, while barriers included school obligations and cultural norms. Modifiable factors affect father and sibling participation, highlighting the need for inclusive family-centred rehabilitation policies and practices.