Development and validation of an ICF-aligned patient- and proxy-reported outcome measure and derivation of a short form for children and adolescents with disabilities.
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- Record sourced from PubMed, PMID 41910367.
- Also identified by DOI 10.1080/09638288.2026.2651678.
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Abstract
This study developed and validated a 59-item ICF-aligned Patient- and Proxy-Reported Outcome Measure (P/PR-ROM) across 11 domains for children and adolescents with disabilities, and derived a 14-item short form through systematic item reduction. Caregivers of children aged 6-18 years (<i>n</i> = 314) completed the prototype. Sampling adequacy was confirmed (KMO = 0.807; Bartlett's χ<sup>2</sup>=23,819.04, <i>p</i><.001). Dimensionality was examined <i>via</i> EFA and CFA, revealing six empirical latent factors organized into 11 ICF-aligned clinical domains. EFA supported a six-factor structure; CFA confirmed acceptable fit for both six-factor and 11-domain models. Twenty-three items were removed for misfit or redundancy, yielding a 36-item pool from which a balanced 14-item short form was derived (polychoric α ≈ 0.936), with domain-level α ranging from 0.781 to 0.943 for multi-item domains. CFA of the 14-item form confirmed excellent structural fit (χ<sup>2</sup>=32.98, df = 32, <i>p</i>=.419; CFI = 1.000, TLI = 1.000, RMSEA = 0.010, SRMR = 0.026). EFA of the short form revealed a three-factor structure. The 59-item P/PR-ROM demonstrated sound psychometric properties with six empirical latent factors mapping onto 11 clinical domains. The 14-item short form maintains strong reliability, structural validity, and meaningful clinical discrimination across 10 domains while substantially reducing respondent burden.