End-of-life ethics for individuals with intellectual and developmental disabilities: Procedural safeguards, state oversight, and respect for persons.
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- Record sourced from PubMed, PMID 42522277.
- Also identified by DOI 10.1002/jhm.70409.
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Abstract
New York State law establishes oversight during end-of-life care for individuals with Intellectual and Developmental Disabilities to avoid any additional mistreatment of people with disabilities. Unfortunately, these safeguards can lead to increases in suffering and loss of autonomy. The lessons learned in caring for these patients are generalizable, and following the steps outlined in this article can help ensure ethical end-of-life care for all of our patients.