Functional status in limb deficiency: development of an outcome measure for preschool children.

Abstract

To develop an outcome measure of functional status in preschool children with limb deficiency. Parents of preschool children with limb deficiency completed self-report measures during a routine medical clinic visit. Outpatient pediatric clinic. Fifty-two parents of children (ages 4 to 7) with acquired or congenital limb deficiency. The newly developed Child Amputee Prosthetics Project-Functional Status Inventory for Preschool children (CAPP-FSIP). Initial psychometric studies indicate high internal consistency reliability of the new instrument. Content validity was established through expert clinician review. Initial construct validity analyses confirm that the CAPP-FSIP discriminates between children with upper and lower deficiency and their prosthesis use for functional activities. The CAPP-FSIP is a promising new measure for evaluating preschool age children with limb deficiency.